About the project
Knowledge Network for women who are living with HIV is a network for HIV-positive women in Sweden. The aim of the network is to spread knowledge within the target group, but also within the greater society. All women who wish to improve the knowledge about HIV on a personal or societal level, are welcome to actively participate in the network. The idea of a knowledge network was born already in 2015, and since 2017 it has been a project at Posithiva Gruppen (PG) in Sweden. The project has its very own project group and project leader. Today, the project group consists of five women.
Inger and Paula, two of the women in the project group, are also the initiators behind the project who have been active since the very beginning. So, when exactly was “the very beginning”? We could go back to the period that Inger and Paula refer to as “the great silence” after the 1980s. When effective HIV-medication finally came, and when HIV became a chronic disease to most, things suddenly turned silent. Nobody talked about how the near future nor old age was to become for women living with HIV. After many years of frustration due to constant deprioritization of HIV-positive women in questions regarding healthcare and HIV-prevention, Inger and Paula had had it. Together they started sorting all the questions, feelings and thoughts they had carried since the 1980s. They were tired of ignorance, invisibility and stigma – and therefore chose to become more public.
Inger and Paula were initiators behind the conference “Women and HIV” that took place in June 2015, in cooperation with Lafa (now KCSH) and Stockholm County Council’s regional council for HIV/STI-prevention. During the conference, the idea of a knowledge network became more tangible. In 2016, the Knowledge Network became a project at Karolinska Institutet (KI), and during the year various information meetings, two seminars and a workshop were organized. After becoming a project at Posithiva Gruppen in 2017, meetings, seminars and workshops have increased in numbers and scope. Now, the Knowledge Network is even dedicated when it comes to events, campaigns and international cooperations. You can find more information about all past events arranged by the Knowledge Network here.
The plans for the years to come, are big and many. The development of Knowledge Network for women who are living with HIV is helped by the feedback that we receive from the women who are involved in activities such as seminars and workshops. The project group makes use of the following matrix as the base for development of seminars. The dynamic matrix shows which topics that the women participating in meetings have developed and requested:
We invite you to take part of the anonymous survey that we have developed, in which you can make suggestions for what the Knowledge Network should keep working on. You can find the survey here. If you are curious about getting more into detail about the project’s explicit goals, sub-goals and activities, please have a look at this page.
Today it is Folkhälsomyndigheten (The Public Health Agency of Sweden) that finances the project Knowledge Network for women who are living with HIV. Since 2017, the Knowledge Network has formed part of the project portfolio of Posithiva Gruppen (PG) in Stockholm. You can read more about Posithiva Gruppen here.
If you have any questions regarding the project or if you want to get in touch with the project group, do not hesitate to contact us on firstname.lastname@example.org or phone number (+46)(0)70-040 77 81.
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