PAST EVENTS

During the years 2015, 2016 and 2017, Knowledge Network for women who are living with hiv has developed a list of topics that has emerged during workshops and activities. You can see all topics in the wordcloud below.

On this page you will find information about past meetings, seminars and events, and also documentation from these. We are working systematically to cover all topics from the project’s list of topics. Furthermore, we will update the list of topics as soon as new topics are being suggested by the women who participate in the activities or feedback channels of the Knowledge Network. If you would like to suggest new topics, you are welcome to answer our survey.

 

Click on the image to see all topics in text.

TOPIC: PENSION, RIGHTS AND STARTING YOUR OWN BUSINESS
SEMINAR WITH BIRGIT KARLSSON AND CISSI CENTERWALL, SEPTEMBER 2017

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On Tuesday the 12th of September 2017, Knowledge Network for women living with HIV arranged a seminar bearing the title: Pension, rights and starting your own business. The Knowledge Network invited two guest lecturers: Birgit Karlsson from Pensionsmyndigheten (Swedish Pensions Agency) and the female entrepreneur Cissi Centerwall, who has created the brand Cissi och Selma. Fifteen persons were present during the lectures, and it was a delight to see that so many women had questions for Birgit and Cissi. We recorded the whole seminar, and you can see the video here.


Birgit’s colleagues from Pensionsmyndigheten will come back to us to talk more about pensions on the 21st of November. The visit on the 21st will be an ”open day” for those who participated in the seminar, as well as for other women in the network who want individual counseling concerning pensions. Please e-mail us if you are interested in participating, so that we can book a time for you on the 21st of November. 

If you want to read more about pensions and starting your own business in Sweden, we recommend the following links:

www.pensionsmyndigheten.se (and pensionsmyndigheten’s page ”Fondvalsguiden”)
www.minpension.se
www.verksamt.se
www.arbetsförmedlingen.se
www.almi.se
www.nyforetagarcentrum.com
Free ”start a business”-exhibition/fair: www.egetforetag.se
www.cissiochselma.se

 

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TOPIC: WEBSITE
WORKSHOP CONCERNING THE KNOWLEDGE NETWORK’S WEBSITE, AUGUST 2017

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On tuesday the 17th of August, five women as well as the project group participated in a workshop on information, knowledge and development of the Knowledge Network’s website. The project group started by presenting the Knowledge Network for women who are living with HIV, and talked about the roles that Inger, Paula and Johanne have. The project group aspires that all women who are living with HIV feel free to contribute with information and feedback on the work that is done in the network, and we encourage everyone to actively participate in the activities and on the website.

In order to identify which sources of information that the women in the workshop are currently using, we did two exercises: ”River of learning” and ”Body mapping”. In the first exercise, we illustrated different situations in which one has gained new knowledge about HIV. When? How? What? During the exercise we identified that the women had some sources of information about HIV in common, while others were different. Some sources provide good and correct information, while others provide bad or outdated information. A selection of the mentioned information sources were:

  • friends/acquaintances
  • TV (but often misleading propaganda about AIDS)
  • participation in organisations and groups (both in Sweden and other countries)
  • rumors in the local community or among neighbors
  • contact with the doctor, health sector or ”infektionsmottagningen”
  • sexual education in school (though often focusing on AIDS)
  • education in the health sector
  • googling different pages concerning HIV, among others smittfri.se
  • participation in conferences and networks
  • campaigns (information and testing) on universities

The second exercise was conducted in groups. The participants identified which questions they had about HIV. The following questions were some of the questions that the participants were lacking answers to:

  • What links can be found between HIV and the menopause?
  • Do HIV-positive women experience menopause earlier than others?
  • Does HIV affect the brain?
  • Can HIV medication affect the bones?

We in the project group will bring the questions with us, and we aspire to find good answers through contact with experts on the area. As soon as answers are found, they will be published on the website or investigated further through activities and meetings.

Do you have answers to any of the questions above? What are the sources? Which other questions do you have concerning women, HIV and the body? Please e-mail us, so that we can find answers to our common questions together.

Before finishing the workshop, the unpublished version of the website was presented to the group. The project group asked participants to reflect upon what they liked and disliked, what they missed, and if there was information on the site that was hard to understand. The project group received a lot of good feedback concerning the website’s design and navigation. One woman wanted to emphasize the topic ”talking with children about HIV” or ”being a mother/parent with HIV”, and the project group will include this topic in the list of topics. Other women wanted to see information in additional languages other than Swedish and English. This is something that the project group will look further into in the future.

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TOPIC: SEX AND STIGMA
SEMINAR WITH SEXOLOGIST KALLE NORWALD, DECEMBER 2016
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Sexolog Kalle Norwald föreläste för Kunskapsnatverk för kvinnor som lever med hiv
Kalle Norwald. Photo: Private

On the 14th of December 2016, Knowledge Network for women who are living with HIV invited women in the target group to a lecture with sexologist Kalle Norwald. The topic of the lecture was ”sex and stigma”. Relatively few women attended the lecture, but this was an advantage as participants could talk freely. We discussed flirting, desire, abstinence, grief, body image, and the importance of having quality time with oneself. Kalle provided the following advice:

  • Write a sex diary
  • Be conscious about when you feel attractive, as well as when you feel desire
  • Look in the mirror and say sexually loaded words to yourself
  • Rub yourself in luxurious soap
  • Flirt
  • Do lustful things that are not sex (such as yoga, training, dance, dating)
  • Explore your body
  • Reward yourself with some time on your own

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TOPIC: QUALITY OF LIFE
SEMINAR WITH PROFESSOR ANNA MIA EKSTRÖM, OCTOBER 2016
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Anna Mia Ekström föreläste för Kunskapsnätverk för kvinnor som lever med hiv
Anna Mia Ekström. Photo: Posithiva Gruppen

On the 14th of October 2016, a group of women met at Smittskydd Stockholm after being invited by Knowledge Network for women who are living with HIV. The occasion was a seminar with Anna Mia Ekström, professor in epidemiology of infections at the public health institution at Karolinska Institute. Anna Mia Ekström was responsible for the study ”Att leva med hiv i Sverige” (Living with HIV in Sweden) that was published in 2016. In the seminar, participants worked with the following question: ”What is most important for your quality of life?”

On a shared first place came ”health” and ”economy”.
On a shared second place came ”mental well-being” and ”employment”.
On a shared third place came ”family life” and ”friends and acquaintances”.

The quality of life report ”Att leva med hiv i Sverige” can be found here.

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TOPIC: KNOWLEDGE
INFORMATION MEETING AND WORKSHOP ABOUT THE NETWORK, OCTOBER 2016
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On the weekend from the 7th to the 9th of October 2016, Knowledge Network for women who are living with HIV held a workshop for members of KCS (Kvinnocirkeln Sverige/The Women’s Circle Sweden), at Sandviks Gård. During the workshop, new topics were added to the list of topics that had been developed in 2015. New topics added were:

  • The connection between HIV-related and age-related issues
  • Ageing in relation to local services and home care services
  • Healthcare and the need to have a permanent doctor in primary care
  • Stigma in healthcare and in general

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TOPIC: KNOWLEDGE
INFORMATION MEETING CONCERNING TOPICS, SEPTEMBER 2016
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Between the 9th and the 11th of September 2016, PG (Posithiva Gruppen/The Posithive Group) arranged a so-called Posithiv Plattform in cooperation with KCS (Kvinnocirkeln Sverige/The Women’s Circle Sweden). Knowledge Network for women who are living with HIV visited the platform and informed about the network. Some new topics were added to the list of topics, among others:

  • Employment and how to start your own business
  • Flexible jobs
  • Retirement homes
  • Swedish For Immigrants (SFI)

Even though some of the topics that came up during the meeting are beyond the frames and capacity of the Knowledge Network, the project group brought the information and feedback with them in future planning of activities.

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TOPIC: KNOWLEDGE AND EMPOWERMENT
WORKSHOP ON STARTING A KNOWLEDGE NETWORK, OCTOBER 2015
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After the conference held in June 2015, a group of women who are living with HIV were invited to a meeting. In the meeting, participants did a brainstorming and workshop concerning the topics that the Knowledge Network was to work with. A list of 23 topics was created, among which these five were the most important ones:

  • Sexuality (sexual and reproductive health)
  • Quality of life
  • Economy and ageing
  • Empowerment and knowledge
  • Knowledge conference

The complete list became the brainstorm matrix that serves as the base of topics when the project group is planning seminars and activities. The list is continuously updated, and here you can find the list as of today.

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TOPIC: WOMEN AND HIV
CONFERENCE ON WOMEN AND HIV, JUNE 2015
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In June 2015, Inger and Paula started lobbying for women and HIV-issues with different organizations. Ivonne Camaroni at Smittskydd Stockholm picked up Inger and Paula’s frustration, and together they initiated a conference on the topic ”women and HIV”. It was during this conference that the idea of a Knowledge Network for women who are living with HIV, was born. Other actors responsible for the conference were the Regional Council for STI/HIV prevention and Lafa – the entity for sexuality and health in Stockholm County Council. The conference lasted a full day, and many lecturers participated. The following lecturers and topics were found in the program (lecture titles are translated from Swedish):

Ophelia Haanyama (Noaks Ark):
”Being a woman and living with HIV: historical perspectives on the journey that women have done”

Karl Norwald (SöS):
”If you know little about HIV, you judge – how women who are living with HIV perceive and live their sexuality”

Conversation between Josefin, Pernilla Albinsson (Karolinska), Birgitta Rydberg (Noaks Ark) and moderator Gabriella Ahlström:
”Health and rights: What are the challenges for women who are living with HIV?”

Kerstin Burman (RFSU):
”Survival, but at what ”cost”?”

Lena Rolfhamre (Karolinska):
”Pregnancy, birth and HIV”

Conversation between Inger, Peter, Paula and Katarina Gyllensten (SöS):
”Families who are living with HIV”

Conversation between Per Andreas Person (Kunskapscentrum för sexuell hälsa) Lena Nilsson-Schönnesson (psychologist) Åsa Cronberg (jurist), Katarina Gyllensten (SöS), Inger, Peter and Paula:
”Treatment and support for women who are living with HIV today”

Karolina Höög (Lafa):
”What is affecting Thai women’s healthcare seeking behavior?”

Conversation between Inger Forsgren (RFHL), Pye Jakobsson (Rose Alliance/Network of Sex WorkProject), Carina Edlund (Rose Alliance) and moderator Gabriella Ahlström:
”Does HIV prevention reach all women in need of informtion?”

Those who visited the conference were women who are living with HIV and their peers, representatives from different NGOs, and personell from local authorities and healthcare. You can read the full report from the conference here.

 

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